Prevent Mesothelioma

Mesothelioma organisations

Cancer research UK information and support

Cancer Research UK

P.O. Box 123
London
WC2A 3PX
Admin phone number: 020 7242 0200 
http://www.cancerresearchuk.org

Cancer Research UK is the largest cancer research organisation in the world, outside the USA.  We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public.  We do this through our websites CancerHelp UK , News and resources and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses using this form, or by telephoning 020 7061 8355.

Specific mesothelioma organisations and sites

ADUK

26 Tollerton Green
Highbury Vale
Bulwell
Nottingham
NG6 9EX

Website: http://www.aduk.org.uk/index.php
Helpline: 0115 927 5108 (24 hours)

This is a self help, voluntary organisation, dedicated to helping people with asbestos related diseases.

British Lung Foundation

73-75 Goswell Road,
London
EC1V 7ER
Phone: 08458 50 50 20 (Helpline Mon-Fri 10.00am - 6.00pm)
Website:  http://www.lunguk.org/

Provides information, runs a helpline and support groups, and produces newsletters and publications. Also funds research into lung diseases. This charity is not just for people with mesothelioma or lung cancer.

Health and Safety Executive

HSE Knowledge Centre
(1G) Redgrave Court
Merton Road
Bootle
Merseyside
L20 7HS
HSE Infoline: 0845 345 0055
Website: http://www.hse.gov.uk/

Produces a range of information on the use of asbestos in the workplace and about the legislation relating to asbestos.  The Bootle information centre is open to personal callers, but the HSE do ask that everyone rings their helpline for advice.  There are other regional offices throughout the UK.

June Hancock Mesothelioma Research Fund

This organisation raises money for research into mesothelioma treatment.  Their website has some useful information about the financial and legal aspects of mesothelioma, including claiming state benefits.
Website: http://junehancockfund.org/index.htm

Mesothelioma UK

National Macmillan Mesothelioma Resource Centre
Hospital Management Offices
Glenfield Hospital
Groby Road
Leicester
LE3 9QP
Website: www.mesothelioma.uk.com/
Helpline: 0800 169 2409

Provides impartial up-to-date information on mesothelioma. Supports the development of specialist nursing practice and research. Queries to the helpline can be referred to a specialist mesothelioma nurse.

Occupational and Environmental Diseases Association

PO Box 26
Enfield 
Middlesex 
EN1 2NT
Phone: 020-8360 6413
http://www.oeda.demon.co.uk

Organisation that supports those with asbestos related diseases and advises on compensation claims and benefits

Ridings Asbestos Support and Awareness Group (RASAG)

50B Town Street
Armley
Leeds
LS13 3RW
Phone: 0113 231 1010 (Monday-Friday 10am - 4pm)
Website: www.asbestos-action.org.uk
Email: info@asbestos-action.org.uk

This organisation runs an information and support service and a website. The website has a forum for exchanging information with other patients and relatives.  A specialist lung cancer nurse takes calls on the phone line on Tuesdays from 10am to 4pm.  They produce a booklet and a newsletter, which you can order through the website.

Roy Castle Lung Cancer Foundation

200 London Road
Liverpool
L3 9TA

Helpline telephone number: 0800 358 7200
Phone: 0871 220 5426
Fax: 0871 220 5427
Email: foundation@roycastle.liv.ac.uk
Website:  www.roycastle.org/

This organisation provides support and information and raises money for research into lung cancers.  They have support groups around the country.

British Thoracic Society

This organisation is a professional body for respiratory specialists.  The website has information about lung cancers and the investigations commonly used to diagnose lung cancers.  It also has the BTS guidelines for the management of mesothelioma, published in 2001.  Please note: this material is written for medical professionals and you may find the information written in a blunt and factual way. 
Website: http://www.brit-thoracic.org.uk/

General support organisations and sites

Mywavelength.com 

This is a free, web-based support network where you can get in touch with other people who have the same cancer type as you or your relative or friend. Just click the link, choose 'C' for cancer and choose the cancer type you are interested in from the list. You can join the network and post a message asking other people to contact you through the site. The network is safe and confidential. People can only contact you through mywavelength.com – they will not be given your email address.

National Cancer Institute

This link will take you to the American National Cancer Institute's patient information on malignant mesothelioma. It is detailed and comprehensive but there are no images:
http://www.cancer.gov/cancerinfo/types/malignantmesothelioma